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Teen with extremely rare disease to play bagpipes on Grey's Anatomy

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Posted at 6:00 PM, Feb 13, 2019
and last updated 2019-02-13 21:00:26-05

SAN DIEGO (KGTV) -- A north county teenager with a unique hobby playing the bagpipes. He’s so good that he’s about to be featured on an episode of Grey’s Anatomy.

There aren’t very many middle school students whose instrument is the bagpipes, but there aren’t very many kids like Ewan Laplante.

“We would always go to the highland games and I would be like that seems really cool that would be fun to do that."

A band Laplante plays in is so good, they were hired to play on the hit ABC show Gray’s Anatomy.

“A lot of my friends do watch the show. A lot of them didn't believe me, like you're not going to be on that show. I'm like hey, it's airing tomorrow!"

A year ago, Laplante was diagnosed with a rare disease. The disease is so rare that only 200 people in the U.S. have it.

Dyskeratosis Congenita makes him susceptible to all kinds of dangerous and deadly diseases.

About 80 percent of those who have it end up needing a bone marrow transplant.

“It sucks to think about it sometimes, but you just have to realize that I'm healthy and I'm happy. I don't try and let it bother me."

Leplante is still active, including taking part in another hobby: pulling the wagon for his sister Megan while she’s out selling Girl Scout Cookies.

Megan is now going for her Girl Scout Gold Award. Her mission is to sign people up to be bone marrow donors.

"If it does come down to that, I want to be the one to help him find somebody to help him feel better and get better,” Megan said.

The episode of Grey’s Anatomy airs Thursday on ABC 10. To learn more about being a bone marrow donor click here.